Friday 31 July 2009

Busy week

This week has again been really busy with Kirsty feeling like she has spent more time travelling to and from appointments than actually being in Elie!

On Tuesday there was an extra trip to Dundee to have Finlay's splint altered. It has been rubbing and causing discomfort so he had stopped wearing it. Its all sorted now and Finlay is back wearing it most of the time.

There is some concern that Finlay has restricted movement in his right hand and arm. A Physio specialising in strokes came to see us at the Hydrotherapy pool on Wednesday and she is going to seek advice from experts at Yorkhill Hospital about using a splint while he is sleeping. We also have an appointment with an Orthopaedic Consultant on Monday and will be talking about the possibility of using botox..on Finlay not Kirsty! Our OT is coming with us to this appointment which we greatly appreciate. Botox is not something we would undertake lightly as it would likely involve a general anaesthetic. Please pray that we would be given good advice on this and for wisdom for ourselves, the doctors and therapists.

We have been continuing with Speech and language therapy this week and that has been going fine. Our wee boy is adding new words and sounds to his repertoire which is encouraging. Please keep praying. We really appreciate it!

The Elie mission is now coming to an end. It has been a really good 2 weeks and we have enjoyed our time with what is a great team!

Looking ahead, we have arranged a few days break at Braemar next Thursday through til Wednesday. Therapy continues but we have managed to rearrange appointments to the beginning of next week and the end of the week after. A few days break is currently very appealing!

Friday 24 July 2009

More ups and downs

The Elie mission is going well, despite lots of rain. On Monday we made 120 contacts and today our numbers were up to 140! It has been really encouraging.


Therapy had continued with Finlay having Physio Tuesday, Wednesday and Thursday this week. On Monday there was concern that he was stiffening up and it was decided that our best efforts at cajoling him and subtly trying to encourage him to use his right arm, hand etc were just not enough. So, we are now doing daily exercises. As you would expect from a 3 year old, our wee boy is not hugely impressed with this. We have been encouraged to do some of his stretching exercises while he is sleeping as apparently muscle tone is good then and thankfully the wee soul sleeps through it and is none the wiser! We were also introduced to the hydrotherapy pool and will be back there again next week for one of the physio sessions. The sessions have been more structured this week and Finlay has worked hard and surprised us with how well he has coped with this.

Whilst we were disappointed at the start of the week at the feedback we received from the Physio, we were encouraged on Thursday to be told that in just a few days there appeared to be a little loosening up. We pray that this would continue and that our wee one will relax into doing his exercises (as opposed to pulling away and objecting which would be the natural response!)


We discovered this week that Finlay's splint has been rubbing and causing a blister so have been advised not to wear it during the day until we can have it adjusted. We have noticed that he isn't as stable on his wee legs without it but this has not stopped him running which has given us a few anxious moments!


Speech and Language has gone fine this week. We have had a few new words, "Daddy" being amongst them, and that has been so good to hear! We continue to pray expectently for more.


We are very much looking forward to our weekend.. free from appointments, therapy sessions and travelling to and from Perth!

Monday 20 July 2009

Great weekend in Elie

We have had a great weekend at Elie..even in all the rain! We are convinced we are where God wants us to be at this moment in time. We are surrounded by folk who know our family well and they are so supportive and willing to do absolutely anything to help. The kids are having a fab time! Its also felt good just to do something that's normal for us as a family!

We had an appointment with Finlay's Consultant Neurologist this morning and that went well. All tests have come back normal with no underlying medical cause being found for the stroke. The great news is that we have been assured this is very unlikely to happen again. The Consultant was happy with the progress Finlay has made. She commented that his right leg is quite stiff and has advised that the more he wear his splint the better. We have an appointment with the Physio tomorrow so Kirsty will have a chat with her about use of the splint.

The Speech and Language therapist visited us at home today so Kirsty and Finlay headed there after the hospital. She introduced us to Makaton, a form of sign language, and managed to make it fun with the use of a communication board and various games. After weeks of it being necessary to concentrate on why Finlay is having problems with speech, it felt really good to be doing something positive and proactive to help him communicate. We feel quite encouraged with this move and are sure we will all have fun learning Makaton!

Kirsty and Finlay continue to divide their time between Perth and Elie, heading back to Perth on Tuesday and Thursday for sessions with Speech and Language, Occupational Therapist and Physio. Wednesday and Friday are therapy-free days and we are so looking forward to them!

Thursday 16 July 2009

We're off to Elie!

This week has been busy with therapy sessions. But amidst that we have managed some nice periods of doing very little. Just what summer holidays should be about!

Fraser accompanied us to Finlay's Physio session yesterday and its amazing what a difference having a big brother there makes. Our wee one was more than happy to copy what Fraser was doing and do exercises alongside him!

At Speech and Language today we also had a little helper, in the form of Murray. He enjoyed being involved and again, it made a big difference to Finlay's motivation to participate. Finlay is trying to say more and the wee soul is becoming increasingly frustrated at times...particularly when we don't know what topping he wants on his ice-cream and other things that are of great importance when you are little. It seems increasingly likely that the issue is to do with coordination of the muscles. Please continue to pray for wisdom for those working with Finlay in this area. We so long for improvement! In the meantime we are to learn Makaton and teach Finlay to sign.

An OT visited us at home on Monday. She is excellent... very thorough! We've been left with a book of ideas to use with Finlay and she also brought with her a bag of toys that vibrate, velcro toys and others that (in theory!) require Finlay to use both hands. On a very positive note, he has done 2 high fives, using both his hands! We also feel his balance is improving, with noticeably less falls. We are very thankful for these small but important steps!

Tomorrow, we head to Elie for 2 weeks of beach mission. Friday will be spent setting up the hall etc and the weekend will be spent sharing information, training etc before the Beach mission starts on Monday. Please pray for the work in Elie...its something very close to our hearts and where we believe God wants us to be. It will be hectic though! Kirsty and Finlay will be fitting this round various appointments and Bruce will co-lead. The kids are very, very excited....Kirsty is still trying to pack!

Monday 13 July 2009

24 Fish..an impressive catch!

This weekend has been nice and quiet. We had a trip to a wonderful ice-cream shop near us, were out at church on Sunday and enjoyed a meal at Pizzahut. Very nice!

Today, we headed to the hospital for Finlay's blood test. This went fine...though a squeamish Kirsty admits to having her head buried in a book so didn't see it happen...she claims the book was to distract Finlay of course!

Finlay had another Speech and Language Therapy session today. There is some concern that he has not made the progress they would have hoped for. They are now investigating whether the problem is to do with the coordination of muscles. Finlay's speech is the area causing us as a family most concern. We are praying for wisdom for those working with our wee boy, that they will know how best to move forward. We believe prayer is effective and appreciate all those of you who continue to pray with us.

Our wee boy continues to stubbornly use his left hand predominantly, even when we are subtly(?) trying to get him to use his right. We would so like to see him use that right hand! We have an OT coming to the house tomorrow and she is bringing him a box of items which vibrate, the idea being these should make him more aware of his right hand.

And to finish as we started..on a totally random note! Our boys caught 24 fish on Lismore today! Kirsty is a teeny bit concerned that these are coming home to be cooked. Rumour has it that Fraser has already enjoyed one on top of a jam sandwich...truly, truly disgusting!!

Friday 10 July 2009

Therapy continues..

Yesterday we were at the Sunflower Centre for a session with the Physios and OT. When you're only 3 its pretty daunting having 4 adults (2 Physios, 1 OT and mum) all focused on you in a place that's totally unfamiliar. It was no great surprise that poor Finlay was not keen to take part! He was introduced to the multi-sensory corner, where he was being encouraged to use items that vibrate etc, in an attempt to make him more aware of his right hand. It was all very strange and unfamiliar for the wee soul but hopefully, in time, it will be less so and we will see some benefit.

Physio and OT have now given us dates for our sessions with them next week and the 2 weeks of the Elie mission. We are hoping on Monday to be given dates for Speech and Language and that will enable Kirsty to plan her next few weeks and see how everything fits in round Elie etc.

Today, Finlay had another Speech and Language Therapy session. Assessing a 3 year old is not proving to be easy! Does he not understand what he's being asked or is he being a wee monkey?? We suspect it is the latter but it is so hard to tell! Please pray that these folk are able to properly assess Finlay and are able to work out the cause of his speech difficulties in order to then work effectively with him. It is hard to see our wee boy quiet..we so miss his chat. Having said that, he is still a jolly wee soul and we are so thankful for that!

On Monday Finlay is to have a blood test redone. There is probably a much more scientific way of explaining it, but basically his original blood test showed his blood on the sticky side of normal. We think this is probably the last test Finlay will have, looking for a cause for the stroke. Please pray for Finlay on Monday as having blood taken is quite an ordeal for little people..not to mention mums and dads! We see the Neurologist a week on Monday and expect the results of other tests then as well as discussing where we go from here.

Wednesday 8 July 2009

Shoe shopping..what fun!

We had our first home visit from the Physio yesterday. Originally Finlay was just to wear his splint in bed but she decided it would be best if he wear it when out and about. This is to help with muscle tone and stop the muscles shortening and Finlay getting into bad walking habits. Wearing indoors is one thing but wearing outdoors presented a wee challenge... he needed 1 shoe 2 sizes bigger to accommodate the splint. The wee soul was not hugely impressed at this latest development so off Kirsty went to the shoe shop she recently purchased his shoes from...shoes he likes... to try and find one to match. To cut a long story short..she eventually successed and Finlay is now kitted out in shoes he is happy with.

The new Physio did a great job involving all the kids in the session, showing them ways they could help Finlay. We need to encourage him to stretch out not only his hand but his whole arm. Involving the others was a very sensible strategy as he is much keener to comply if they are doing it too. We have all been practicing stretching exercises across the kitchen table!

This morning Murray came with us to the Speech & Language session. Again this proved to be a great help as our wee one happily copied his big brother doing his tongue exercises. There was no way he would do them otherwise! He doesn't really see the point in some of the things he's being asked to do and the therapist is going to have to come up with some good games if she wants him to respond! They are still trying to work out the cause of Finlay's speech difficulties but we are seeing little steps, with him becoming fluent in "No" and "mum" over the past few days! He is a determined wee soul and is becoming very good at problem-solving. We are trying to encourage him to use gestures more and he is managing to communicate and tell us what he wants. It is just taking longer!


Finlay's sleeping patterns we are now seeing returning to normal. He had 2 weeks of falling asleep with Kirsty beside him, followed by a spell when he was so worn out by his therapy sessions he was sleeping for hours through the day. This seems to have settled. He is having quiet periods throughout the day but no daytime naps and is now falling asleep at a much more normal time of night.

As a family we are all doing fine, with the occasionally wobbly moment! Hannah, Fraser and Murray are happier now they have started to see their wee brother make progress. We do thank God for the improvements we have seen and continue to pray for more!

Monday 6 July 2009

To Elie or not to Elie?

Our wee one had a good session with a lovely bubbly speech and language therapist today, but even her enthusiasm could not quite keep his attention and after 45 minutes he had headed for the door! Another issue they are assessing is whether there is a problem with the co-ordination of the muscles and/or whether the muscles are weak. It is all a bit of a confusing picture for us but we have confidence in the therapist and even greater confidence in a healing God.

Many of you will know that we have led Elie beach mission for the last few years. For those of you who are not familiar with this, we spend two weeks in Elie, working with big groups of kids on the beach during the day and young folks in the town at night; fast action, entertaining programmes presenting a heap of good stuff from the bible.

Three weeks ago as we wept, literally, over Finlay, with a very negative possible prognosis being presented to us we could not imagine how we would cope with the next day or the day after that. Returning to work was a hurdle too large to contemplate. Now three weeks on we find ourselves in a very different place. Finlay has made great progress and his personality and willingness to have a go at everything is shining through. There are still real issues and we are fully committed to a therapy schedule and totally looking to God who we know promises to meet all our needs according to his riches in glory.

Last week we found ourselves thinking about Elie, seriously thinking about Elie, and in productive discussions with Gordon and Phil from SU. Elie is a big part of all our lives. We met there! (Another story for another day!) We have a huge heart for the place and for the work God is doing there. The agreed decision is that we will go and we are really keen to go. We have a great team. Kirsty will step down from leadership to allow her to focus on all Finlay's therapy sessions, based at Elie or from home and most likely a good combination of both and she is confident too in this. Gavin will co-lead with Bruce. Hannah, Fraser and Murray? Delighted!

If you are a prayer then please pray for the work in Elie. We would love you all to come visit us and will give you dates and details in a post or two.

Sunday 5 July 2009

Lazy weekend

It has been so good to have the family all together this weekend. We have had late breakfasts, late lunches and late dinners and enjoyed doing lots of not very much. Hannah has returned from camp and is full of all the stories, having had a really, truly fab time.

Today we so enjoyed being at church and being again with a community of folks who have provided us with so much support. Good too for many of them to see Finlay and see all the progress he has been making. We have so valued the folks in St Madoes who have made our meals since Finlay first got sick and they have continued over the last week allowing us just that little extra breathing space to adjust to a different routine. We are now much stronger in ourselves and are ready to get back on with normal living this week. The words "thank you" are not enough but they are very heartfelt!

Tomorrow Finlay has his Speech and Language appointment at Ninewells. This is the area that continues to give us real concern. We are so longing and praying for an increase in speech. We really believe that prayer is effective and appreciate those of you who share our faith and are able to stand with us in prayer.

Being at the hospital also gives us all the perfect excuse to check out the best ice cream shop in Dundee.................!

Friday 3 July 2009

Farewells

At the start of our day in hospital today we said our farewells to so many people who had shown us such care over the last few weeks. We appreciate them all so much and were actually sad to say our good byes. We have seen some real God connections and these are particularly precious to us.
Finlay had his last sessions with physio and OT today at the hospital. Yesterday he had been too tired for OT. You can understand that. He has had a significant number of adults working with him each day over the last few weeks. It will be good for him to have some more "normal" time to be the three year old he is, to make progress with the therapy that is scheduled but to just be the normal wee monkey that he is at other times. Anyway, today with the OT he made a jigsaw of himself and then had to put it back together. It was good to see him interacting and really trying with the tasks. Next week he will have one physio session at home and one with OT at the Sunflower Centre.
The Speech and Language therapist is really working hard to try and determine whether the lack of speech is caused by a difficulty in comprehension. It must be difficult when assessing a three year old. There are also possible issues with word retrieval skills and word processing. Those of us with Speech and language backgrounds or teaching may understand this better. The bottom line for this is that we know that God knows where this is at with Finlay and we look to him. Finlay will continue with the S&L team at Ninewells for the next three weeks, Monday, Wednesday, Friday.
Fraser and Murray spent the day at the Safari park with Jenny and Tim. A slightly unusual birthday treat for Jenny but a good time was had by all. Happy Birthday Jenny! Hannah is due back tomorrow after her week at camp. We are all looking forward to our weekend.

Wednesday 1 July 2009

Ups and downs

Today has been a really tough day for us. It is hard at times to know how to walk some of the paths that this situation has led us to. We are praying for real wisdom. We are also in need of some restful sleep. All our boys, on the other hand, have had a really good day and we are thankful for that.

Finlay had good sessions with physio and OT today and has been using his right arm and hand, a little reluctantly, and we have to admit to an element of bribery, but he did use them. He was playing Connect 4 right handed with OT this afternoon. We have it confirmed that he will have speech and language Mon, Wed and Friday next week in Ninewells. There is a lot of assessment of his understanding going on. He is making more noises and he is able to repeat a "Bye!" when encouraged to.

And a big happy birthday to Fraser. The Posh Party was just fab. Grandma had been busy today helping with the cakes and Anthea allowed her house to be taken over by lots of well dressed and polite for about ten minutes boys! (We do not know where we would have been without Anthea over the past days. Anthea, we so appreciate you and Mark!) Apologies for the whoopie cushions and farting whistles that have been brought home. They were nothing to do with us!